Alex is nearly 3 years old (33 months). He is 2ft 6in and weighs 13lb 7oz.

He lives in Liverpool, England with his mum, dad, brother Michael, aged 13 and sister Jessica, aged 10.

He was diagnosed as having Majewski Osteodysplastic Primordial Dwarfism in May 2006. he is one of five known Majewski Osteodysplastic Primordial Dwarves living in the UK.

He was born on the 11th April 2005, weighing 2lb 10oz. His length was less than 12 inches. He stayed in a special care unit for 3 months before being discharged on the 4th July 2005.

From birth Alex suffered with severe reflux and copious oral secretions which caused him to aspirate on many an occasion.

In January 2006, one of his lung's collapsed due to an infection after he aspirated. As Alex was being intubated, he had a cardiac/respiratory arrest.

Alex technically died for just over two minutes and it took 2 hours for him to become stablised before being transferred to a specialised children's hospital.

Within 10 hours of the cardiac/respiratory arrest, he started to develop epilepsy, which resulted him having up to 30 seizures over a day, some lasting for up to 10 minutes. As a result of this, his brain eventually went into Status Epilectus which lasted for a 2 week period.

Alex spent 7 months in Alder Hey hospital recovering from the above and associated side effects. He was left fully paralysed for near a month and he suffered several more collapsed lungs due to further aspirations because of the reflux.

He eventually had major surgery on his stomach in the form of a "Nissen Fundoplication" in May 2006. This stopped him refluxing and vomiting, which has potentially saved his life. He was eventually discharged in July 2006.

Since this discharge, Alex has come on in leaps and bounds, he eventually got all movement, motor skills back and his co-ordination is improving everyday. His social skills are excellent saying his development is delayed; and again this is improving day by day.

Prior to June 2007 he did not walk but after visiting specialists in America they identified the problem, made a special pair of boots to replace his exiting splints to suit his size and now he walks fine. He has problems with his feet (they both have a condition called valguls) but these will eventually/hopefully be fixed, at present the special boots help the condition from getting worse and has physio everyday.

He is fed through a gastrostomy tube and he does sample some food but he will not swallow it, we do try and gently entice him but he's having none of it.

He does not talk apart from the phrase "Hi Yah" and the words "No", "Yea" and the words mama and nana which you have to coax out of him. He communicates more with his facial expressions and body language. We're trying to teach him a sign language called Makaton. He is a pleasant individual with a very independent determined mind and loves the attention he's given by his family and anyone he meets.

Prior to April 2007, he has only been hospitalised three times (chest Infections) but he recovered within a week of each occasion.

At the present time (February 2008) our little hero and fighter is doing just fine, life will always be a challange for him but we believe that he will overcome anything that comes his way.

John & Sue - Alex's Mum & Dad