Links
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John & Sue - Alex's Dad & Mum |
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This is a link to a web site for the airline that helped us so much to travel to the USA in June 2007 by donating free return flights in conjunction with MPG (see lik below). We want to personnally thank all the staff in Luton/New York; on the ground and in the air who treated us with the upmost care and attention (like they do to all their passengers). We also want to thank Lawrence Hunt, the cheif excutive for everythign he has done to male this part of the our journey special. especilly when he took the time to speak to us in New York whislt saying goodbye to his own family. This is a link to a company that shared the expenses with Silverjet (see above) to fly us to America and back. A special thank you goes to Marc Mendoza for arranging every thing. The two companies ensured the start and end of a journey was made that little bit more special - so again - thank you both! This is a link to a web This is a link to a web site for a group of musicians called Searchin'. They are a Liverpool based 60's tribute band. Formed early in 2006, the band play covers of The Searchers, Beatles, Del Shannon and other well respected bands from the Merseybeat era. Andy, Mike, Steve, Dave and Allan have kindly offered their services to us to assist Alex and ourselves achieve or dreams. They are also members of an organisation called the Merseycats (please see the next link below), who organise and put on shows for sick, disadvantaged and needy children over the whole of Merseyside. Please visit their web site to see the good work they do and to learn about the band and their achievements. This is a link to an organisation called "The Merseycats". They consists mainly of current players and ex-members of the many groups from the Merseybeat days, (Many of whom were, and still are, household names) along with their wives, families, friends and supporters. They are a body of musicians, ex-promoters, roadies, etc., which organises shows with the original Merseybeat-era bands, to raise funds for sick, disadvantaged and needy children over the whole of Merseyside. The Merseycats are very proud that, by using our musical talents, much needed cash can be raised to help so many children's' charities. Please visit their web site to see all the good work they do, have done and also learn about their proud achievements. This is a link to one of Maghull's premier florists'. We have been customers of thiers for many years and I can say hand on heart that if you need something special in terms of flower arrangements and gifts, then you will not be disappointed with anything you get from them. Additionally all the staff are some of the most friendly people you will find behind a sales counter and they treat all their customers with a personal touch that is second from none. Please visit their website, even more give them a call or drop in, if you need a special arrangement. http://uk.geocities.com/acsil@btinternet.com/index.htm This is a link to a support group for Amputees and Carers in Liverpool (ACSIL). One of the Secretaries (Gary Thomas) is a very close friend and has provided me with invaluable advice on fundraising and dealing with a diasability (Gary is an Amputee himself). His humour has been a godsend over the years and even though he's had his own fair share of problems, he's always the one to turn a sad situation into sometime funny. If your an amputee, facing an amputation or a carer of an amputee and need advice or help, visit their web site and get in touch them. They will help you and provide you with all the necassary information to help you cope during difficult times. This is the link to the Royal Liverpool Children's NHS Trust hospital otherwise known as the famous Liverpool Alder Hey Hospital. It's one of the largest and busiest children's hospitals in Europe, All the staff who has treated and cared for Alex will remain close to our hearts forever. Please visit their web site as they heavily on public funding. This is a link to a very special place and one that has given Alex some much time and love over the last 2 years. Again it's a place with staff who will remain close to our hearts. They care for children 0 - 18 years with life threatening or life limiting conditions and their families from Merseyside, Cheshire, North Wales and the Isle of Man here in the UK. Please visit their web site as they do rely heavily on public funding. This is a link we found on the first day of Alex's diagnosis whilst searching for information. At the time we were still very much unaware of the condition apart from our geneticist/doctors explaining what Alex had, they could not fully advise us as they had not come across this condition before. We had looked at a couple of sites before Gary's; and from our own perspective it was hard to except even after initially saying to our geneticist that his condition was not a concern to us because Alex had been through and going through so much already. Anyway, Gary is a photographer and when we visited his site, both Sue and myself broke down, not because of sadness but because it depicted Primordial Children in a beautiful positive way compared with the other information we had seen on the internet. This is a link that our Genticist passed us on the day of Alex's diagnosis. it brought us into contact with many of the parents that had a child (or two)afected by MOPD II. This is the one of the first sites that many a parent will find first when searching for information on Primordial Dwarfism. The site was set up by parents of Primordial Childen (Jackie Kritzeck, Hannah's mother and Doug/Monica White, Danny's father and mum). Please visit it, without this site, knowledge of Primordial Children would have been reduced solely to a small amount of Medical Information and Jargon. All the Children and Parents included on the site have shown the reality of Primordial Dwarfism through their own stories and pictures. It gave us so much in understanding Primordial Dwarfism, especially when we needed it most. It also made us realise that we were not alone and more inportantly, Alex is not alone. This is a link is to the hospital that we visited in America. All we can say is that the site gave us an in-depth insight into Alex's condition. It's also been the primary source for understanding the medical issues that effect people with Primordial Dwarfism. Whilst Alex's Doctors and Consultants have been superb in dealing with his non related MOPD medical problems they have not been able to advise much about his condition because of the rareness. Our dream was to visit this place for many reason and thanks to a vast amount of people our dream became a reality. We visited the Alred I Du Pont Clinic in Delaware, USA in June 2007, 4 months after we started an appeal. |
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